A-L-A-G-I-L-L-E'S JOURNEY is the story of a young girl who learns she has a rare disease called Alagille Syndrome. Faced with this disease that is widely unknown her mother educates herself and fights to bring awareness to the world.
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SC Joined: Aug-22-2010 |
My name is Sherida Codling-Deofils I am a budding author whose goal is to bestow the element of hope to all children.
http://www.youtube.com/watch?v=CFvcsSjIfVA
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Alagille Syndrome is rare genetic isorder that causes abnormal deveolpment of many organs in the body. It occures in approximately one in every 30,000 live births and there is know known cure. (AGS/ALGS)
Contact Info:www.alagille.org
